Spreading hope for children with Hyaline Fibromatosis Syndrome
Flora’s Garden is a gentle space built in honor of our brave little girl, Flora, and every child living with Hyaline Fibromatosis Syndrome (HFS) — a rare genetic disorder that affects the skin, joints, and internal organs.
Here, we plant seeds of hope, awareness, and support for families affected by HFS. Through storytelling, education, and community, we believe even the rarest conditions deserve attention and love.
Flora was born with Hyaline Fibromatosis Syndrome — a rare and challenging condition that requires daily care, medical support, and strength beyond her years.
Her journey inspired us to create this space, not just for her, but for every child living with HFS. Through sharing her story, we hope to:
Raise awareness about this rare disease
Connect with other families and advocates
Fund research and care for those in need.
This is Flora, the heart and soul behind Flora’s Garden.
Flora is our joyful daughter who fills every day with love and laughter. She adores painting, baking yummy treats with her family, singing, and dancing. Cuddling and curling up to read her favorite books is how she likes to spend her time. She’s especially in love with owls. On the weekends, you may run into her magical adventures at Disneyland.
One of her favorite things to do is tell owl jokes, and her laughter is as sweet as her smile.
🌼 “What do you call an owl WHO does magic? WHO-DINI!” – Flora's favorite joke
Even though Flora lives with Hyaline Fibromatosis Syndrome, a very rare and painful condition, she wakes up each day full of sunshine, strength, and the purest joy. Her courage inspires everyone who meets her.
Flora’s Garden was created to share her light with the world, to raise awareness, and to help fund research that brings hope to families like hers. Every kind heart who joins her garden helps her story grow.
Hyaline Fibromatosis Syndrome (HFS) is a very rare genetic condition, so rare that fewer than 250 children worldwide have ever been diagnosed. One of those children is our daughter, Flora.
HFS causes the body to make too much of a jelly-like substance called “hyaline,” which builds up in the skin, joints, and sometimes inside the body. This can cause:
Painful bumps on the skin or joints
Trouble moving or walking
Difficulty eating, speaking, or growing
Frequent infections or hospital visits
Some cases also experience protein-losing enteropathy, causing stomach pain and severe diarrhea
Every child’s experience is different, but all need special care, love, and support.
Because this condition is so rare, there is very little medical research, no cure, and few treatment options. Most doctors have never even heard of it.
That’s where Flora’s Garden comes in. We are a nonprofit created by loving parents to:
Raise awareness for Hyaline Fibromatosis Syndrome
Support families affected by HFS
Fund research to find better treatments, and someday, a cure
💝 Donate- Your donation—big or small—brings us one step closer to:
Giving children with HFS more comfort and care
Raising awareness and helping families around the world
Supporting the scientists who are trying to understand and treat this condition
Together, we can plant hope where there was once uncertainty 🌳
We are recognized as a 501(c)(3) nonprofit organization in the United States. As such, all donations are tax-deductible to the fullest extent allowed by law.
This means that not only are you helping families impacted by HFS, but you may be able to lower your US taxable income at the end of the year.
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”
— Jeremiah 29:11
© 2025 Flora’s Garden. All rights reserved.