Spreading hope for children with Hyaline Fibromatosis Syndrome
Flora’s Garden is a gentle space built in honor of our brave little girl, Flora, and every child living with Hyaline Fibromatosis Syndrome (HFS) — a rare genetic disorder that affects the skin, joints, and internal organs.
Here, we plant seeds of hope, awareness, and support for families affected by HFS. Through storytelling, education, and community, we believe even the rarest conditions deserve attention and love.
Flora was born with Hyaline Fibromatosis Syndrome — a rare and challenging condition that requires daily care, medical support, and strength beyond her years.
Her journey inspired us to create this space, not just for her, but for every child living with HFS. Through sharing her story, we hope to:
Raise awareness about this rare disease
Connect with other families and advocates
Fund research and care for those in need.
This is Flora — the heart and soul behind Flora’s Garden.
Flora is a joyful and bright 2-year-old who fills every day with love and laughter. She adores painting, baking yummy treats with her family, singing and dancing. Cuddling and curling up to read her favorite books is how she likes to spend her time. She’s especially in love with owls. On the weekends you may run into her and magical adventures at Disneyland.
One of her favorite things to do is tell owl jokes — and her laughter is as sweet as her smile.
Even though Flora lives with Hyaline Fibromatosis Syndrome, a very rare and painful condition, she wakes up each day full of sunshine, strength, and the purest joy. Her courage inspires everyone who meets her.
Flora’s Garden was created to share her light with the world, to raise awareness, and to help fund research that brings hope to families like hers. Every kind heart who joins her garden helps her story grow.
🌼 “What do you call an owl WHO does magic? WHO-DINI!” – Flora
Hyaline Fibromatosis Syndrome (HFS) is a very rare genetic condition—so rare that fewer than 100 children worldwide have ever been diagnosed. One of those children is Flora.
HFS causes the body to make too much of a jelly-like substance called “hyaline,” which builds up in the skin, joints, and sometimes inside the body. This can cause:
Painful bumps on the skin or joints
Trouble moving or walking
Difficulty eating, speaking, or growing
Frequent infections or hospital visits
Every child’s experience is different, but all need special care, love, and support.
Because this condition is so rare, there is very little medical research, no cure, and few treatment options. Most doctors have never even heard of it.
That’s where Flora’s Garden comes in. We are a nonprofit created by loving parents to:
Raise awareness for Hyaline Fibromatosis Syndrome
Support families affected by HFS
Fund research to find better treatments—and someday, a cure
💝 Donate- Your donation—big or small—brings us one step closer to:
Giving children with HFS more comfort and care
Raising awareness and helping families around the world
Supporting the scientists who are trying to understand and treat this condition
Together, we can plant hope where there was once uncertainty.
🌼 (DONATION LINK COMING SOON)
please e mail me if you are considering donating thanks so much!
floras.garden.hfs@gmail.com
🔗 Share – Spread the word on social media. Awareness is the first step toward change.
💬 Connect – Know someone with HFS or a rare condition? We’d love to hear from you.
👉 [Follow Us on Instagram]
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”
— Jeremiah 29:11
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